September is National Childhood Cancer Awareness Month. Join us today, September 17, 2009 as CURE Childhood Cancer honors CURE Kid Kylie Seitz. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Kylie’s Fund.
Kylie Seitz’s Story:
At four years old Kylie started having leg pains in August 2008 when she started playing soccer. We thought it was growing pains because she only complained every now and then at first, then it became so bad she would not stop crying and she started to run a fever. We saw her pediatrician who sent us for x-rays. That same day we went to Egleston Children’s Healthcare of Atlanta. They x-rayed her again and did blood work. The next day they did an MRI, then the next day they did a bone biopsy, and the next day they did a CT scan and bone scan. The next day they confirmed Kylie had Ewings Sarcoma, and she began her fourteen rounds of chemotherapy. The cancer was only in her leg and had not spread to the other parts of her body praise God. Next we had a bone marrow biospsy and put a port in her chest where she receives all of her medications including cyclophosphamide, doxorubicin, vincristing, ifosfamide, etoposide, mesna, zofran and a host of antibiotics for infections and other medicines for pain. Neupogen shots are given at home daily after chemo.
In December 2009 Kylie celebrated her 5th birthday in the hospital. The staff at Children’s Healthcare of Atlanta and her two big sisters Halie and Cadi made it a very special day for her. Kylie is a very strong little girl. She has not enjoyed having to go through this but she knows she is loved very much and she is being completely spoiled by everyone! She is Princess Kylie.
In April 2009 one of the best surgeons in the country removed the damaged femur and replaced it with a titanium rod from just above the growth plate to the top of the femur at the hip. Her bones are very brittle, as she has not used that leg since surgery. She has experienced a lot of pain but enjoys physical therapy and is now able to put a little pressure on her leg with the assistance of a walker.
Kylie finished her last round of chemo on July 25, 2009. She has been given an all clear and is cancer free. She will be followed every three months to make sure the cancer does not return and that her heart and lungs are functioning properly. Kylie is a survivor but will always have the fear of recurrence.
God has so gracefully provided for our daughter and our family, and I have promised Kylie that I will spend the rest of my life serving others. We have been blessed by this journey and by the wonderful doctors and staff that have provided for her. More research is needed to find out what causes bone cancer and how to treat it without the long-term effects chemotherapy has on the body. Pediatric cancer especially needs the focus of everyone’s attention. This has been emotionally, physically and financially devastating for our family. I pray answers are found soon.
About September & CURE’S Kids Conquer Cancer One Day at a Time:
September is recognized as National Childhood Cancer Awareness Month. This September, CURE Childhood Cancer has committed to raising awareness and raising money to help find a cure for childhood cancer in our lifetime and put an end to this terrible disease through a special program CURE’s Kids Conquer Cancer One Day at a Time!
Please help us in our goal of raising $30,000 in the month of September while honoring special CURE kids each day of the month who have been affected by childhood cancer.
For more information, please click here.
About CURE Childhood Cancer:
Founded in 1975, CURE Childhood Cancer is dedicated to conquering childhood cancer through research, education and support of patients and their families. Since its establishment as a grass-roots organization, CURE has focused its efforts on improving the care, quality of life, and survival rate of children with cancer.
The founders, parents and a dedicated pediatric oncologist, joined forces to support laboratory research that would translate into immediate care for children with cancer.
Since that time, CURE has raised millions of dollars to fund cutting edge research at the Aflac Cancer Center Blood Disorders Service at Children’s Healthcare of Atlanta and Emory University School of Medicine.
Through innovative programming, CURE also provides support for stricken families, providing them comfort and support during their time of devastating need.
Donate to Kylie’s Fund
Visit us online at www.curechildhoodcancer.org for more information.